
A drug for a disabling skin disease is now covered by national health insurance. The National Health Administration announced that as of July 1, it’s subsidized a new biologic treatment for generalized pustular psoriasis. The condition causes episodes of painful, pus-filled bumps on the skin. More than 70% of patients experience three or more serious flares every two years. More than 40% of patients end up in the hospital for more than 10 days during an episode. For many patients, the disorder can drastically affect quality of life.
Ms. Chen
Patient
It starts with small pustules that turn into very large pustules. And you’re afraid that they’ll burst. Sometimes I would play with the pustules. I found that I could move them around. My ankles were covered with them. Anytime I stood up, my feet would go numb. I couldn’t bring myself to look in a mirror.
Huang Yu-huei
Linkou Chang Gung Memorial Hospital physician
When it comes to treatments for generalized pustular psoriasis, evidence of effectiveness is often inadequate. At present, only this new biologic treatment is supported by enough clinical data.
Shih Chung-liang
NHI director-general
Since July 1, we have covered this monoclonal antibody against the IL-36 receptor. Patients with the condition urgently need this treatment, because they have very few other options.
The insurance coverage will benefit hundreds of patients with generalized pustular psoriasis [so-RAI-a-sis], easing the heavy financial cost of treatment.
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皮膚病也可能重症住院?據統計,超過7成以上的全身型膿疱性乾癬病友,兩年內平均有3次以上重度發作,或皮膚病灶10個手掌大;更有4成以上患者,發作時住院超過10天。健保署宣布7月1號起,給付全身型膿疱性乾癬專用生物製劑,造福全台上百名患者。
[[病友 陳小姐]]
“他從小膿疱變成很大片的膿疱,然後妳又怕它破掉,我那時候還會玩那個膿疱,發現膿疱還會跑來跑去,腳踝全部都是滿滿的膿疱,我只要腳著地就會麻 痛,然後我也不敢照鏡子”
[[長庚醫院皮膚部主治醫師 黃毓惠]]
“針對全身膿疱型乾癬,目前來講很多證據都不足,大概就只有這個新型的生物製劑,因為它是真的透過臨床的試驗,案例也比較足夠”
[[健保署長 石崇良]]
“我們七月一號所納入健保的,是特別對IL-36這個,基因型的單株抗體,這類病人非常迫切需要的,因為他們的選擇性比較少”
面對台灣上百位病友,長期下來飽受的身心煎熬,如今有方法紓解沉重經濟負擔,對患者生活可說是一線曙光。
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