Charity art auction raises awareness of Rett Syndrome

Charity art auction raises awareness of Rett Syndrome

2024-10-31

Now for a charitable project in Kaohsiung. The 2024 Asia Illustration Art Fair will open on Christmas Eve in Kaohsiung. This year, a special oil painting auction will feature, raising money for the Rett Syndrome Association. The project was launched by students and parents from two of Kaohsiung’s international schools. They’re hoping to auction off 100 self-painted artworks, and raise awareness about the rare medical condition, Rett Syndrome.

The tables are lined with colorful oil paintings. Everyone here is contributing to the 2024 Asia Illustration Art Fair in Kaohsiung.

Hugo Wang
Exhibition organizer
I’ve been volunteering for the Rett Association for a few years, and I want to use this charity event to raise awareness about Rett Syndrome, which is a rare disease.

The project is the baby of Hugo Wang, a student at I-Shou International School. He’s working with students and parents from his school as well as Kaohsiung American School. Their oil painting auction is expected to sell about 100 paintings. All the proceeds will go to the Rett Association. It’s been one challenge after another, from painting the artwork itself to designing posters to promote the event. But the team has taken it all in stride, focusing on their intention to raise awareness about this little-known condition.

Hong Lai
Exhibition organizer
One day, my mom told me there was this event that’s hoping to help people with this condition. And I looked up the disease, and I saw how pitiful it is, and how much help they need. I was moved. So I wanted to use my capacities to help.

There are just 184 people with Rett Syndrome in Taiwan. Huang Wei-hsiang, the secretary general of the Taiwan Rett Syndrome Association, has a daughter with the condition. Its onset began when she was one and a half. By five years old, she developed epilepsy, and many of her capacities began to regress. She needs help to eat food, and now finds walking difficult.

Huang Wei-hsiang
Taiwan Rett Syndrome Association
This condition is rare, the rarest of rare. One in thousands. We hope this auction will make more people aware of our situation and reach out to help us.

Many parents brought their kids to the event to have fun painting together, while cultivating the spirit of charity. They hope this message will be passed on to everyone who attends the auction.

For more Taiwan news, tune in:
Sun to Fri at 9:30 pm on Channel 152
Tue to Sat at 1 am on Channel 53

亞洲插畫藝術博覽會12月登場百幅油畫義賣捐助"雷特氏症協會"

2024-10-31

2024亞洲插畫藝術博覽會，將在耶誕節前夕登場，高雄美國學校和義大國際高中，兩所學校的學生、家長，今年聯手合作，將在博覽會中推出油畫義賣，預計拍賣100幅油畫，所得全數捐給臺灣雷特氏症協會，希望透過公益活動，讓更多人認識罕見疾病。

桌上一幅幅顏色飽滿的油畫，都是要參加在高雄舉辦的2024亞洲插畫藝術博覽會。

[[策展人王以昕]]
“因為我這幾年來，都有在雷特氏這個協會服務做志工，所以我想透過這次的慈善活動，來讓社會上更多人了解到雷特氏這個罕見疾病”

就讀義大國際高中的王以昕，和高雄美國學校，兩所學校的學生、家長，合作舉辦油畫義賣，預計拍賣100幅油畫，所得全數捐給雷特氏症協會，從作畫到海報設計等等，困難重重，但他們沒被擊倒，為的就是希望讓人更加認識罕見疾病。

[[策展人賴家弘]]
“就是有一天媽媽就告訴我，有這個活動，就是要來幫助這種病人，然後我就去查一下這個病人，看到他們比較可憐，需要幫助，然後就很感動，想要用自己的力量幫助他們”

全台僅有184位雷特氏症病友，理事長的女兒，就是其中一位，1歲半開始發病，5歲癲癇發作，生理機能下滑，進食需要家人協助，至今連走路都困難。

[[臺灣雷特氏症病友關懷協會理事長黃偉祥]]
“因為我們是罕病中的罕病，萬分之一。透過這次的義賣的展覽活動，讓更多人來知道我們，幫助我們”

不少家長更帶著家裡的小小孩，投身做公益，一起繪製油畫，一代接棒一代，透過畫筆傳遞愛心，讓善的力量，向下無限循環。

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Treasure hunter
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Treasure hunter
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